Abby's Results

We went back to Texas Children's Hospital yesterday to meet with Abby's neurologist and to get the results of her MRI on Tuesday.

So far, her development seems normal with no obvious signs of any developmental delays. That was good - but we pretty much knew that, already.

The MRI showed that her corpus callosum did not change at all. It is still about 60% of the normal. The MRI also showed that her ventricles has increased in size 10-15% (after taking into account the normal increase in size). When she was born and the partial agenesis of the corpus callosum was discovered, we were thinking that her small corpus callosum was possibly making her ventricles look bigger. While that may contribute, it is now clear that there is some problem with her ventricular system that is resulting in a build up of pressure. There appears to be some aqueductal stenosis - which is where the small drainage "pipe" between the 3rd ventricle and the 4th ventricle, called the aqueduct, is at least partially blocked. Her aqueduct appeared small, which implies that she is not getting good flow through it.  We are trying to better understand the circulation system of the Cerebrospinal Fluid (CSF). Whatever the cause, we are going to be watching more closely in case the ventricles continue to grow or increase in rate of growth.